{"id":184,"date":"2018-11-30T21:12:14","date_gmt":"2018-11-30T21:12:14","guid":{"rendered":"http:\/\/ring14usa.com\/?page_id=184"},"modified":"2026-04-07T09:36:02","modified_gmt":"2026-04-07T14:36:02","slug":"ring14-international","status":"publish","type":"page","link":"https:\/\/ring14usa.com\/index.php\/research\/ring14-international\/","title":{"rendered":"Ring14 International"},"content":{"rendered":"<div id=\"pl-184\"  class=\"panel-layout\" ><div id=\"pg-184-0\"  class=\"panel-grid panel-no-style\" ><div id=\"pgc-184-0-0\"  class=\"panel-grid-cell\" ><div id=\"panel-184-0-0-0\" class=\"so-panel widget widget_sow-editor panel-first-child panel-last-child\" data-index=\"0\" ><div\n\t\t\t\n\t\t\tclass=\"so-widget-sow-editor so-widget-sow-editor-base\"\n\t\t\t\n\t\t>\n<div class=\"siteorigin-widget-tinymce textwidget\">\n\t<p><!-- wp:paragraph --><\/p>\n<p>We are committed to funding and promoting research on Ring14 Syndrome and other anomalies originating from the 14th chromosome to improve treatments, quality of life, and the understanding of these conditions.\u00a0 We pledge that at least 50% of our revenue will go towards this goal. Together with Ring14 International, we fund research grants and host international research workshops.<\/p>\n<p>Research efforts are organized\u00a0through Ring14 International (<a href=\"http:\/\/www.ring14.org\">www.ring14.org<\/a>), a worldwide nonprofit organization that functions as a coordinating network for the various national chapters which all share the same objectives. The main goals of Ring14 International is to support and promote, on an international level, medical and scientific research regarding the syndromes of the 14th chromosome. Ring14 International consists of\u00a0 the established chapters in Italy and USA and new chapters in France, Spain, Netherlands, and Belgium with more opening in the future.<\/p>\n<p><!-- \/wp:paragraph --><\/p>\n<p><!-- wp:image {\"id\":574,\"sizeSlug\":\"large\",\"className\":\"is-style-default\"} --><\/p>\n<figure class=\"wp-block-image size-large is-style-default\"><img data-attachment-id=\"574\" data-permalink=\"https:\/\/ring14usa.com\/index.php\/research\/ring14-international\/sedi-ring14-1\/\" data-orig-file=\"https:\/\/i0.wp.com\/ring14usa.com\/wp-content\/uploads\/2021\/02\/sedi-ring14-1-scaled.jpg?fit=2560%2C1810&amp;ssl=1\" data-orig-size=\"2560,1810\" data-comments-opened=\"1\" data-image-title=\"sedi-ring14-1\" data-image-description=\"\" data-image-caption=\"\" data-large-file=\"https:\/\/i0.wp.com\/ring14usa.com\/wp-content\/uploads\/2021\/02\/sedi-ring14-1-scaled.jpg?fit=900%2C636&amp;ssl=1\" data-recalc-dims=\"1\" loading=\"lazy\" decoding=\"async\" width=\"900\" height=\"636\" class=\"wp-image-574\" src=\"https:\/\/i0.wp.com\/ring14usa.com\/wp-content\/uploads\/2021\/02\/sedi-ring14-1-1024x724.jpg?resize=900%2C636\" alt=\"\" srcset=\"https:\/\/i0.wp.com\/ring14usa.com\/wp-content\/uploads\/2021\/02\/sedi-ring14-1-scaled.jpg?resize=1024%2C724&amp;ssl=1 1024w, https:\/\/i0.wp.com\/ring14usa.com\/wp-content\/uploads\/2021\/02\/sedi-ring14-1-scaled.jpg?resize=300%2C212&amp;ssl=1 300w, https:\/\/i0.wp.com\/ring14usa.com\/wp-content\/uploads\/2021\/02\/sedi-ring14-1-scaled.jpg?resize=768%2C543&amp;ssl=1 768w, https:\/\/i0.wp.com\/ring14usa.com\/wp-content\/uploads\/2021\/02\/sedi-ring14-1-scaled.jpg?resize=1536%2C1086&amp;ssl=1 1536w, https:\/\/i0.wp.com\/ring14usa.com\/wp-content\/uploads\/2021\/02\/sedi-ring14-1-scaled.jpg?resize=2048%2C1448&amp;ssl=1 2048w, https:\/\/i0.wp.com\/ring14usa.com\/wp-content\/uploads\/2021\/02\/sedi-ring14-1-scaled.jpg?resize=1200%2C848&amp;ssl=1 1200w, https:\/\/i0.wp.com\/ring14usa.com\/wp-content\/uploads\/2021\/02\/sedi-ring14-1-scaled.jpg?w=1800&amp;ssl=1 1800w\" sizes=\"auto, (max-width: 900px) 100vw, 900px\" \/><\/figure>\n<p><!-- \/wp:image --><\/p>\n<p><!-- wp:paragraph --><\/p>\n<p>Together, we have funded several critical research projects, including genotype\/phenotype correlations; neurological assessments of pediatric epilepsy; and language development studies. Our international scientific advisory board consisting of MDs and PhDs critically evaluates all grant proposals an recommends funding for those with the most transformative potential.<\/p>\n<p><!-- \/wp:paragraph --><\/p>\n<p>In an effort to aid researchers, we also<\/p>\n<ul>\n<li>maintain a biobank that contains samples of DNA, leukocytes, lymphoblast, and fibroblast cells in agreement with Telethon Network of Genetic Biobanks (TNGB,\u00a0<a href=\"http:\/\/biobanknetwork.telethon.it\/\">http:\/\/biobanknetwork.telethon.it<\/a>) and, in particular, the Biobank located at <a href=\"https:\/\/dppm.gaslini.org\/biobank\/\">Gaslini Institute<\/a>, formerly Galliera Hospital in Genoa.<\/li>\n<li>maintain a <a href=\"http:\/\/www.ring14.org\/eng\/460\/clinical-database\/\">clinical database<\/a> with 54 patients including information on genetics, growth and development, neuropsychiatry and neurology, comorbidities, therapies, etc. The database is owned by Ring14 International and it is updated by Doctor Rinaldi Berardo.<\/li>\n<\/ul>\n<p>The biobank and database are available to the international scientific community, upon request. For complete information, please visit <a href=\"http:\/\/www.ring14.org\">www.ring14.org<\/a> and enter the researcher portal. You can also find a complete list of scientific projects\/grants funded by Ring14 associations.<\/p>\n<p><!-- wp:image {\"align\":\"center\",\"id\":546,\"sizeSlug\":\"large\",\"className\":\"is-style-default\"} --><\/p>\n<figure class=\"wp-block-image aligncenter size-large is-style-default\"><img data-attachment-id=\"546\" data-permalink=\"https:\/\/ring14usa.com\/index.php\/research\/ring14-international\/ring14-international-funding\/\" data-orig-file=\"https:\/\/i0.wp.com\/ring14usa.com\/wp-content\/uploads\/2021\/02\/Ring14-International-funding.png?fit=526%2C722&amp;ssl=1\" data-orig-size=\"526,722\" data-comments-opened=\"1\" data-image-title=\"Ring14-International-funding\" data-image-description=\"\" data-image-caption=\"\" data-large-file=\"https:\/\/i0.wp.com\/ring14usa.com\/wp-content\/uploads\/2021\/02\/Ring14-International-funding.png?fit=526%2C722&amp;ssl=1\" data-recalc-dims=\"1\" loading=\"lazy\" decoding=\"async\" width=\"526\" height=\"722\" class=\"wp-image-546\" src=\"https:\/\/i0.wp.com\/ring14usa.com\/wp-content\/uploads\/2021\/02\/Ring14-International-funding.png?resize=526%2C722\" alt=\"\" srcset=\"https:\/\/i0.wp.com\/ring14usa.com\/wp-content\/uploads\/2021\/02\/Ring14-International-funding.png?w=526&amp;ssl=1 526w, https:\/\/i0.wp.com\/ring14usa.com\/wp-content\/uploads\/2021\/02\/Ring14-International-funding.png?resize=219%2C300&amp;ssl=1 219w\" sizes=\"auto, (max-width: 526px) 100vw, 526px\" \/><\/figure>\n<p><!-- \/wp:image --><\/p>\n<p><!-- wp:separator {\"opacity\":\"css\",\"backgroundColor\":\"vivid-red\",\"className\":\"is-style-wide\"} --><\/p>\n<hr class=\"wp-block-separator has-text-color has-vivid-red-color has-css-opacity has-vivid-red-background-color has-background is-style-wide\" \/>\n<p><!-- \/wp:separator --><\/p>\n<p><!-- wp:file {\"id\":577,\"href\":\"http:\/\/ring14usa.com\/wp-content\/uploads\/2021\/02\/Ring14-International-Pamphlet.pdf\"} --><\/p>\n<div class=\"wp-block-file\"><a id=\"wp-block-file--media-5451aae1-d59a-4e17-a137-44f09b7e57f9\" href=\"http:\/\/ring14usa.com\/wp-content\/uploads\/2021\/02\/Ring14-International-Pamphlet.pdf\" target=\"_blank\" rel=\"noreferrer noopener\">Ring14 International Company Profile<\/a><a class=\"wp-block-file__button\" href=\"http:\/\/ring14usa.com\/wp-content\/uploads\/2021\/02\/Ring14-International-Pamphlet.pdf\" download=\"\" aria-describedby=\"wp-block-file--media-5451aae1-d59a-4e17-a137-44f09b7e57f9\">Download<\/a><\/div>\n<p><!-- \/wp:file --><\/p>\n<p><!-- wp:separator {\"opacity\":\"css\",\"backgroundColor\":\"vivid-red\",\"className\":\"is-style-wide\"} --><\/p>\n<hr class=\"wp-block-separator has-text-color has-vivid-red-color has-css-opacity has-vivid-red-background-color has-background is-style-wide\" \/>\n<p><!-- \/wp:separator --><\/p>\n<p><!-- wp:paragraph --><\/p>\n<p><!-- \/wp:paragraph --><\/p>\n<\/div>\n<\/div><\/div><\/div><\/div><\/div>","protected":false},"excerpt":{"rendered":"<p>We are committed to funding and promoting research on Ring14 Syndrome and other anomalies originating from the 14th chromosome to improve treatments, quality of life, and the understanding of these conditions.\u00a0 We pledge that at least 50% of our revenue will go towards this goal. Together with Ring14 International, we fund research grants and host [&hellip;]<\/p>\n","protected":false},"author":3,"featured_media":0,"parent":70,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"advanced_seo_description":"","jetpack_seo_html_title":"","jetpack_seo_noindex":false,"jetpack_seo_schema_type":"","footnotes":""},"class_list":["post-184","page","type-page","status-publish","hentry"],"jetpack_sharing_enabled":false,"jetpack_shortlink":"https:\/\/wp.me\/P7sRw4-2Y","jetpack_likes_enabled":false,"jetpack-related-posts":[],"_links":{"self":[{"href":"https:\/\/ring14usa.com\/index.php\/wp-json\/wp\/v2\/pages\/184","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/ring14usa.com\/index.php\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/ring14usa.com\/index.php\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/ring14usa.com\/index.php\/wp-json\/wp\/v2\/users\/3"}],"replies":[{"embeddable":true,"href":"https:\/\/ring14usa.com\/index.php\/wp-json\/wp\/v2\/comments?post=184"}],"version-history":[{"count":3,"href":"https:\/\/ring14usa.com\/index.php\/wp-json\/wp\/v2\/pages\/184\/revisions"}],"predecessor-version":[{"id":2577,"href":"https:\/\/ring14usa.com\/index.php\/wp-json\/wp\/v2\/pages\/184\/revisions\/2577"}],"up":[{"embeddable":true,"href":"https:\/\/ring14usa.com\/index.php\/wp-json\/wp\/v2\/pages\/70"}],"wp:attachment":[{"href":"https:\/\/ring14usa.com\/index.php\/wp-json\/wp\/v2\/media?parent=184"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}