Welcome to Ring14 USA

Our children and their families face tremendous challenges – they need effective treatment options, better therapies, more support, and hope. Our goal is to meet these needs. We envision a brighter future for our Ring14 families.  

Ring14 USA Outreach is a non-profit organization founded by a group of mothers whose children have Ring14 syndrome. We advocate for all those affected by the rare neurodevelopmental disorders of the 14th chromosome, in particular Ring14 Syndrome, from the children who suffer from the symptoms to all the doctors, caregivers, friends, and family who help to care for these fragile children. We are here for you!!!


The DeWoody Family talks about Marie, Ring14 Syndrome, and Ring14 USA

Our Mission

In our effort to improve the quality of life for those affected by the rare neurodevelopmental disorders of the 14th chromosome, such as Ring14 Syndrome, we commit to promoting and funding critical research, raising awareness of these rare disorders, and providing thoughtful support to this community.

Our Vision

To create a brighter future for these children by finding targeted treatments and therapies which will enable them to reach their full potential and live their best life. To create a supportive community for our Ring14 families, so that no one faces these challenges alone.

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