Ring14 USA is a national nonprofit founded in 2011 by five mothers whose children are affected by Ring14 Syndrome (aka Ring Chromosome 14), but our organization supports all those affected by rare neurodevelopmental, neurogenetic disorders of the 14th chromosome, including rings, deletions, duplication, translocations, and uniparental disomy . Our children and their families face tremendous challenges – they need treatment options, better therapies, support, and hope. With this in mind, we raise funds to promote research, raise awareness, and support families by providing educational resources, facilitating social networks, and hosting family conferences. Most research efforts are organized through Ring14 International, our international parent nonprofit that coordinates the shared research objectives of all the national Ring14 chapters. Together, we fund critical research projects, organize scientific workshops, and maintain both a biobank and clinical database to aid our researchers.
Our Mission
In our effort to improve the quality of life for those affected by the rare neurodevelopmental disorders of the 14th chromosome, such as Ring14 Syndrome, we commit to promoting and funding critical research, raising awareness of these rare disorders, and providing thoughtful support to this community.
Our Vision
To create a brighter future for these children by finding targeted treatments and therapies which will enable them to reach their full potential and live their best life. To create a supportive community for the families, so that no one faces these challenges alone.
You can reach us at:
Ring14 USA
P.O. Box 9562
Midland, TX 79708